A New Week

Hannah has been doing better the last couple of days. Today she has been doing well clinically (heartrate, blood pressure, numbers etc), but has been very restless/ unsettled & irritable. She has been vomiting with every feed & spiked a couple of temperatures. None of the usual method of settling seem to be working (clean nappy, repositioning, suctioning). I did get to hold her again this morning which she seemed to enjoy.

Yesterday the doctors came & scanned her heart and everything is looking as expected. However, they are a little concerned that the leaking heart valve is making the other problems worse, even though it is not a significant leak. They will try & help this with some medication, but if this doesn't work by the end of the week there are some big decisions to be made as the only other option is surgery. This would be high risk & the drs are not sure in her current condition that Hannah would make it thorugh. As you can imagine this is a scary prospect to be facing, even though we trust the God is in control & He can pull her through despite the odds.

We also tried putting her back on my breastmilk today, but unfortunately the fat returned in the drain fluid straight away, so we'll give her the formula for another week & try again.

Please pray for Tom & I, that God would continue to give us the strength we need, not just physically & emotionally, but also spititually. I feel Satan is really trying to use this situation to weaken our faith. Having said this, I have also been encouraged by the following Scriptures:


Though I walk through the valley of the shadow of death, I will fear no evil: for thou art with me; thy rod and thy staff they comfort me. Psalm 23:4

Do not be anxious about anything, but in every situation, by prayer and petition, with thanksgiving, present your requests to God. 7 And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus. Philippians 4:6-7