Back Again

Joshua, my parents & I have had a short trip away over the weekend. We were offered some free tickets to Legoland, & seeing as my parents needed to go back to Esbjerg to pick up somethings from the house, we decided to make a round trip of it. So Saturday morning after popping up to the hospital for a quick visit with Hannah we set off for Legoland. Joshua had a great time looking at all the lego models & going on the rides that he could. I'm not sure what his favourite was, but he was pretty impressed with the penguins & the trains. I can be pretty sure his least favourite was the pirate boat ride through the tunnel. He was terrified.

We slept at home Saturday night. It was great to see home again & see that everything was in order, as well as my vege garden & flower beds. My parents-in-law have been doing a good job of looking after it for me.

Sunday morning we went to church before heading back to Skejby. What a pleasure it was to see our church family again, as well as join together for worship.

While we were away Tom stayed back in Skejby with Hannah. She has been a bit "off" over the weekend. She is still stable, but she has had diahorrea, vomiting, fever &  been quite cranky. Today they think this may be due to withdrawal symptoms from the Fentanyl (pain med), so have increased it slightly again. She has been off dialysis since 6am yesterday & has been producing approx. 3ml urine per hour. This is of course an improvement from 0ml, but still no where near enough. Tom has just come back from the hospital & informed me that her "renal numbers" have increased so she will probably start back up on dialysis again. Please continue to pray for her kidneys to start working properly.

They have also been fiddling around a bit with her feeds. The fluid coming out of her drains turned cloudy on Friday, which they thought was due to her body not breaking down the fat in the TPN (IV nutrition) & my milk. So she was changed to a special formula & TPN mix, but this didn't change anything & when the surgeon came round Saturday he said he believed it was due to the CVC line which they were putting the TPN through sitting in the cardiac cavity rather than in the heart where it should. So they stopped using this line, the drain fluid turned clear again & she started getting my milk again. But this morning the drain fluid is cloudy again so she's back on the special formula.